Uveal Melanoma Registry
Uveal Melanoma Registry
A national Uveal Melanoma Registry has been set up to record information about patients diagnosed with uveal melanoma in Australia.
What is a registry?
A registry is a means to collect “real-life” outcomes from patients that have a particular condition in order to both understand the disease better as well as support new treatments in submission to governmental authorities.
What is the registry hoping to achieve?
The registry is hoping to be a source of both medical and consumer information about what the actual impact of ocular melanoma is around the world. The Australian national registry will contribute to a larger international registry covering Australia, The United States and Europe.
Where can I participate in the Registry?
Many of the ophthalmologists and oncologists treating ocular melanoma across Australia will be participating in the international registry and will be able to provide you with information about it.
For more information on the Uveal Melanoma registry and Australian sites, you can also visit the following links:
Research
Communications
Support
