Support

Ocular Melanoma Specialists

There are 3 main specialists you might see if you are diagnosed with ocular melanoma

Ophthalmologist

An Ophthalmologist is an eye doctor and will be able to inform you about the appropriate treatments for the primary tumour in the eye.

Medical Oncologist

A Medical Oncologist deals with issues of prognosis as well as existing and experimental therapies that may treat or prevent the appearance of the melanoma.

Radiation Oncologist

A Radiation Oncologist deals with radiation treatment. In some cases, this might treat the eye itself, in others it might treat some of the melanoma that has spread.

Resources

Ocular Melanoma Nurse

A specialist oncology nurse available Australia-wide to support ocular melanoma patients:

  • Navigate their diagnosis and the healthcare system
  • Liaise with members of the healthcare team – GP, Oncologists, Ophthalmologists, local Oncology Nurses and Allied Health
  • Answer questions
  • Share information and resources
  • Access clinical trials
  • Participate in research projects

CONTACT:
E: omnurse@svha.org.au
T: 0477 972 150
Days: Tuesday to Thursday
Telehealth or Face-to-Face

Patient Information

AOMA and Melanoma Institute Australia worked together to produce two brochures that provide information about early and advanced ocular melanoma, including diagnosis and treatment options.

Brochures

Supporting People with Cancer

AOMA and Melanoma and Skin Cancer Trials conducted a Supporting People with Cancer Project, which was funded by Cancer Australia. The project included a patient and consumer centred education initiative aimed at helping melanoma and skin cancer patients living in regional and rural Australia.

View information about the project and access resources here.

Prevention

Patient Stories

Jodee Rich’s Story
Glenn Watson’s Story
Dr Ian Kamerman’s Story
Jess Van Zeil’s Story

Support Groups

AOMA Patient Advocacy Group

The Australasian Ocular Melanoma Alliance has established a patient advocacy group to get consumers (patients, carers, family or friends) involved in the research process. Having dedicated patient advocates are important to:

    • Provide input into the development and conduct of clinical trials and other research
    • Develop consumer advocacy activities that effect policy change
    • Provide a forum to support one another

If you would like to participate, please email: aoma@masc.org.au

You can also visit the facebook group https://www.facebook.com/groups/OcularMelanomaAustralia 

Melanoma Patients Australia

If you are a patient looking for a local support group or forum, Melanoma Patients Australia can help. They offer a range of services including professional counselling, support groups and peer to peer connections. For more information, visit the MPA website https://melanomapatients.org.au

Research

Communications

Support

Melanoma and Skin Cancer Trials Logo
Australasian Merkel Cell Carcinoma Interest Group logo