Research

Research invitation

Development of a quality of life questionnaire for people with metastatic uveal melanoma

Open to Clinicians and Metastatic Uveal Melanoma Patients

Medical oncologist Prof Anthony Joshua and collaborators at the University of Technology Sydney (UTS) are conducting a study to develop a questionnaire for measuring impacts on quality of life from metastatic uveal melanoma and its treatment for use in future clinical trials.

Participation will involve a 30 minute interview conducted via video conference (Zoom or Skype) in which you will be asked about the impacts on quality of life you have observed (clinicians) or experienced (patients) from metastatic uveal melanoma and its treatment.

Clinicians from all disciplines – medical, nursing and allied health – are invited to participate.

If you would like further information, please contact the co-ordinating investigator, Dr Tim Luckett, via tim.luckett@uts.edu.au or 02 9514 4861.

This study has been approved by the St Vincent’s Hospital Human Research Ethics Committee 2022/ETH01013

What is a
Clinical Trial?

Clinical trials are research to test new treatments, interventions or tests for the purpose of preventing, detecting, treating or managing  diseases or medical conditions. Clinical trials evaluates how people respond to these treatments, interventions or tests and what side effects might occur as a result. Clinical trials are considered to be part of best practice medicine and are one of many treatment options for treatment of a disease or illness.

More information can be found on the Australian Government’s Australian Clinical Trials website www.australianclinicaltrials.gov.au/what-clinical-trial

How do I find a clinical trial? 

Clinical trials can be difficult to find as a patient and you may also have difficulty understanding whether or not the trial is suitable for your condition. The following resources may help you identify available clinical trials. If you have any questions about your eligibility for a trial, take note of the name or registration ID of the trial so that you can consult with your medical professional regarding your potential eligibility.

To view melanoma clinical trials currently recruiting or those soon to recruit participants, please consult: masc.org.au

Or you can visit the following websites:

Australian New Zealand Clinical Trials
ClinicalTrials.gov
Australian Cancer Trials Search
Rare Cancers Australia Knowledgebase